So now, almost exactly 13 years later, I've been there, done that, got the scar tissue... I had the laser surgery. I had the stents. I had the tracheostomies, hard and soft. I had the permanent stoma. I had the permanent stoma reversal. I had more laser surgery. I had more stents. They blocked, they failed, they got infected, and (on one especially delightful occassion) they came out. 8cm long that thing was, believe me it was a bitch to cough out, lol. And I won't even get into the realm of respiratory arrests. The crash trolley doesn't exist only on Casualty, I found this out the hard way, ha!
And now, they say, I need a transplant. Isn't that just scary as Hell? I keep getting told I'm at the top of the list, it'll happen soon, but a few days ago a junior doctor let slip that it might actually be more like three years. A year, I can do; three years, I can't.
I can barely do anything for myself anymore, as the breathing prevents me. Without oxygen, there's nothing.
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